Wednesday, October 1, 2008
About me:I am married to my wonderful husband Doug. It will be four years this January. We have two beautiful boys together. Hunter is the oldest born 9-21-07, and Lucas was just born 8-22-08. Yeah I get around :)... Hunter was born with AV malformation, this is where the blood vessels in his brain didn't form correctly. He has under gone three surgeries to try to fix them. He was never expected to live. In fact living past the first day without fixing it was only 10%, and he made it 3 days with no surgery. He is definetely our little miracle. He made it through all three surgeries with no complications which in itself is a miracle. They said there was a 80% chance he wouldn't make it through, and he made it through 3 times! He was at primary children's for 3 months. He is almost out of heart failure, but that is well controlled with medication. He is completely out of kidney, and liver failure. He still has a mass of veins that need to be embalized, but they seem to be either dying or getting smaller, so they don't really effect him. You would never know to look at him that anything is wrong. He seems like a perfectly healthy boy. He is walking great, and can say: nigh night, mommy, daddy, Paddy (our dog), no no no, a burp!, and a few others. He said his first word, mama, at 7 months, and was walking by 10 months. No one ever expected him to do this well. He shows no signs of brain damage. He understands a lot too. Lucas was born perfectly healthy. It is truly the difference between night and day! Luke wakes up about twice a night, and Hunter wakes up at least three times. Hunter has never slept through the night, because he can only eat about 6-7 ounces at a time. Luke eats 8!!! So our little guy needs to wake up to eat. Our only saving grace is he can feed himself so we just have to give him the bottle, and we can go back to bed. He used to wake up every half hour to eat because he could only drink 1 ounce at a time. We thank the dear Lord that that time of our life is over! I think I got about 1 MAYBE 2 hours of sleep at night. Doug had to work so I wouldn't let him take him at night. Then during the day Hunter didn't want him because he wasn't used to seeing him. But that is all over with now. Hunter waits at the gait when he hears Daddy come home. He loves him so much! So we have a great little family now. At times it seems too hard to bear, but then your little guy comes and hugs you, or our baby smiles at you, and looks your way when he hears your voice. That makes things bearable for another day.
Subscribe to:
Post Comments (Atom)
1 comments:
Look how much your lives have changed in just a year. WOW!!! Aren't you glad you've gotten past that? Still lots of challenges, but things are looking up, huh?
Post a Comment